Remember: Nobody on this site is a doctor,
therapist, or a pharmacist. Know your sources!
Crazy Meds is not responsible for the content of sites we provide links to.
We like them, but what's on those sites is their business, not ours.
Why You Should Join a Support Group
We need support groups. You should belong to a support group.
Why?
The meds are never
enough. Whatever your problem is, if it's bad enough that you
need to be taking these crazy meds, you need some kind of talk
therapy, too. And that applies to those of you with epilepsy,
neuropathic pain disorders, migraines, sleep disorders and whatever
hell else these meds might be used for. It may not necessarily
be therapy therapy, like those of us with mental illnesses
need, but even if you had the greatest childhood on the planet and
you need to take an SSRI or other
antidepressant for irritable
bowel syndrome, you need to speak to a counselor of sorts to get an
idea of how to live your life with IBS. And join a support
group of people with IBS. Because most doctors are just going
to give you meds. Yet a lot of these disorders and syndromes
and such are totally life-changing, and you need a freaking
instruction manual! Epilepsy kills!1
Neuropathic pain makes daily living a
struggle. So even if you don't need on-going therapy like
someone with bipolar disorder, depression, chronic panic/anxiety or
schizophrenia does, if it's bad enough to required the meds listed
on this site, it's bad enough to seek the recommendations of a
professional to advise you as to how you need to make changes to
your life so it doesn't suck as much as it has lately.
But what does that
have to do with support groups? Everything! The
counselors know only so much. For a lot of them your problem
is an intellectual exercise. It's not often that you find a
professional counselor who actually has the problem they're getting
paid to solve for someone. Maybe they dealt with it for
someone else in their life, and that's pretty damn good. If
you find someone with a personal stake in a disorder, that's as good
as finding someone who actually has it. Anyway, the thing that
helps most is experience. Personal, direct experience.
People who have gone through it all before. People who can
tell you that you're not alone, that you're not the only freak like
this. People who can give you practical advice about how to
live your goddamn life with whatever it is you have.
So if what you
have is bad enough to need meds, you have a lot of work ahead of you
to get better. And there are a lot of people who are going
through what you're going through now, or have been through the same
things. You don't have to figure it all out. They've
made a bunch of the mistakes for you already. Learn from them
before you go off and make those same mistakes. Plus things
are going to be a lot more difficult, things that used to be easy.
Or at least easier. Everyday things, like going to work, or
just getting your life together enough to eat something and do the
goddamn dishes once in awhile. Stuff like that is a huge
struggle when you're mentally ill and/or having seizures and/or
dealing with neuropathic pain. In a support group you get two
things you're not going to get from most anyone else - understanding
about how shitty your life is because of an illness, and not a bunch
of garbage about you're being a lazy good-for-nothing slob; and
practical coping techniques. Like they say in AA, "One day at
a time." Well that's how it is when your brain hurts.
You have to deal with one thing at a time one day at a time.
So it's from a support group for whatever you have that you'll learn
how to do the goddamn dishes often enough that you won't hate
yourself about it, and you'll give yourself enough slack that you
won't hate yourself at all about these issues because you have a
brain injury for God's sake! Handy hint: I may be too much
of an environmentalist to use them, but I won't give anyone who has
a brain injury shit about using paper plates and the like.
We've all got enough, er, on our plates.
Everyone expects
their families to support them in a time of crisis.
HAH! Oh, that's a good one!
OK, Mouse and I have issues, but parts of our families have been
supportive of us, let's be clear on that. But we know of far
too many people whose families dropped them like the red-headed
step-child once the problem of a specific mental illness or
neurological disorder was diagnosed. Face it, the stigma of
mental illness and epilepsy is such that many people are completely
freaked out, and don't want a Schizoid Mary anywhere near them ever
again. Or their families were the source of a lot of their
problems to begin with, and not just the genetic source. So
even if the family put up a front of support, it may not be such a
good idea. But most humans need that kind of familial
interaction and reassurance. Where are you going to find it?
In your support group, that's where. They quickly become
families. You'll find yourself closer to some of your support
group members than you are to blood relatives. I'm not even
sure how many siblings my mother has, let alone how many first
cousins I have, what any of their names are or where they live.
I know the name of only one of my half-siblings, but I don't know
where he is, if he's still alive or anything like that. If my
father weren't famous at one time I'd have no idea about when he
would finally die. But I send Christmas cards to support group
members scattered across North America and keep tabs on them to make
sure their lives are together and they're doing what is needed to
stay alive and relatively sane. I'm a probably an extreme
example, but you get the idea.
And there's the
whole question of if you should be on meds at all. Everyone
questions that. It's not crazy thinking. OK, sometimes
it is. Face it, if you're bipolar, if you're schizophrenic, if
you're epileptic, you always have to be on meds. There are a
few very rare exceptions, but there's no way in Hell I could
tell you about who and what and how. There was also a retired
woman in New Jersey who won the Lotto twice. Why did she keep
playing after winning the first time? How is she going to live
long enough to spend the money she won from the second jackpot?
Odds-defying shit just happens. But the point is, there are
some illnesses where you just have to keep taking your meds forever,
or until they come up with something better, and that's the way the
world works. And being in a support group helps you stay on
your freaking meds, as much as they suck. Please read my
12 Steps to Stay on Meds for when you
feel like flushing all your meds down the toilet. But for a
lot of other disorders, meds truly are optional, and you're right to
question if you need them or not. I sure as hell don't know if
you need them or if you don't. Getting a second opinion is
critical, but I'll tell you what really helps, ask people who have
the disorder. Ask them about how bad it is for them. Ask
the ones who take meds and the ones who don't. Find out from
other people. It's difficult to know what goes on inside of
someone else's head, but believe me, it helps them to talk these
things out. Try to gauge just how badly it sucks for you and
everyone else, and just how much the meds suck. Because it
really does come down to what is going to suck less - the meds or
the illness. You are the only person who can make the
decision, but you do have to factor in how much emotional damage
your illness is doing to people around you. People in a
support group can give you that kind of perspective.
Talking it out is
one of the best things you can do for most of your issues.
Again, you may not even need meds for something like depression,
anxiety or PTSD. Just talking it out with a therapist and,
most importantly, a support group, along with a proper diet (And,
like finding the right meds, finding the right diet is going to
involve a lot of trial and error. Your mileage may vary.
One size does not fit all. But I'm convinced that too many
people eat too much crap, and that doesn't help matters.) and
regular exercise. You can't be lazy. Whether you take
pills or not, you have to eat well and exercise regularly if you
expect to clear your head. But I digress. When you talk
things out with a therapist, often the therapist will guide you
along certain lines or to certain events. That is all well and
good. And, presuming you have found the right therapist doing
the right sort of therapy for your condition, it's eventually going
to get you to a place where you're just not so fucked in the head
all the time. But there are times when you just have to get
whatever the hell is really bugging you off your chest
however the hell you need to do it. And you need to tell it to
people who have been through the same shit as you have. That's
where the support group is so freaking necessary. There is no
other way to explain it, but those of us who are mentally ill are
just shit magnets. Either we actively go out and cause
trouble, or we internalize a lot of the weirdness in our heads and
that just sets us up to be the victims of the universe.
Usually the latter. Despite what you see on movies and TV,
the mentally
ill are six times more likely to be the victims of violent crime than the
perpetrators. In a support group you can just let it all out!
From the Dark Age through the Middle Ages to the Renaissance the
popular form of treatment for mental illness in Europe was the
exorcism of demons. In a way, they were on to something.
We all have our personal demons that need to be exorcised. The
therapist/priest can do only so much. I have a lot more faith
in the shamanistic practice of the support group, where fellow
wounded healers can help each other exorcise the demons within.
The demons of child abuse, the demons of sexual assault, the demons
of suicide attempts, the demons of surgery without anesthesia, the
demons therapy that went way wrong, the demons of highly
dysfunctional families, the demons of substance abuse, the demons of
the horrible things done when manic, so many goddamn demons.
In the circle of a support group these demons can be exorcised.
Normal people want you to keep the demons inside of you. They
can't handle how ugly and painful those demons are. People
have been "fired" by their therapists because their demons have been
too ugly and painful. In the right support group you can
finally exorcise the demons that have been gnawing away at your guts
for so long. Out, demons, out!
Don't forget to
give back. Once you feel up to it, help others with your
experiences. Talk about what you've been through. You
never know, you may still have a few lingering imps in your system
you need to get rid of years later.
Another resource for support is wherever you go for your spiritual needs.
Be that online or face-to-face. Many spiritual groups deal with mental
health / neurological issues as well. I'm all for getting spiritual
assistance along with whatever other therapies you're doing. I don't have
any pointers to particular groups because there are just too many, and you
really have to find the practice that works for you.
As His Holiness the Dalai Lama said during a recent visit to San Francisco,
all religions are good. Just find one. If you don't like it, find
another one. The religion doesn't really matter, just as long as you're
doing something.
If anyone knows something about exorcising demons, it's the religious types.
Take my word on it, they help. They really do help.
The groups I'll be providing links for are ones that
guests can freely view without having to register first. I'm all for being
really private and requiring registration before anyone even reads what's in
your group, but I prefer allowing people to sample a group without knowing
they're there. Each method has its pros and cons.
The Overlords of the 12 Zernox Galaxies have compelled me
through messages in the Sunday Chronicle to beg you for your support. So
if this site has been of use and/or amusement to you, visit the
Support Page to find out how you can help.
This includes
reviewing Crazy Meds for Amazon.com and/or
There's also our Mental Mall to
snag some free software or a purchase some books.
Better yet,
if you run a business and want to advertise on Crazy Meds, see
our page on ad
rates and policies. I'm all about
fiscal transparency, so follow the money for full
disclosure of my finances.
Hey, did you find this page all by itself through Google or some
other search engine? Great! But to really appreciate the entire site, you need to start here.
Take care of yourself, and keep taking your crazy meds!
If you still have unanswered questions about this or other medications,
including which one is, or combination of meds are the best for you, your best
bet is to ask on Crazy
Meds Talk. Better yet, if you want to let the world know how they
worked out for you and want to help out others in their quest for the correct
meds, join the party.
If you want to discuss your issues, I suggest checking out one of
the various
support groups online.
Otherwise, if you're letting me know about how much you like or hate the site,
or need to let me know about medication effects in private, then just drop
a note to jerod23 at gmail dot com Honestly, I usually don't have a
lot of time to answer e-mail these days. The snide autoresponse
message that may or may not hit your mailbox is going to tell you the same
thing.
Another problem is that you may not get a response even if I wanted to send you
one. You see, so many dickweeds with malicious intents and too much time
on their hands have appropriated the crazymeds.org domain name to use for their
spam, viruses and the like. Subsequently some lazy-ass e-mail protection
software authors just go by the domain name, and not the IP address. So
I've been blacklisted because of the actions of others. Or the software
just doesn't like the domain name because of the "crazy" and/or "meds." Or
your question about a particular medication will set off spam flags. So
the e-mail just wouldn't go through regardless. Sorry.
1. In addition to having a suicide
rate second only to the bipolar, epileptics have a mortality rate three times
higher than the general population. We can have a seizure that causes an
fatal accident, such as an absence seizure or complex partial seizure while
taking a bath. Or we can have a super-seizure, known as status
epilepticus, that will literally fry our brains until we die, or turn into a
vegetable. Or we can have a quiet wacky seizure that will kill us in ways
medical science does not yet understand. That's known as SUDEP, Sudden
Unexplained Death from Epilepsy. As opposed to all of the explained deaths
from epilepsy. Depending on various factors, like the types of seizures
you have, if you're prone to having them at night or during the day, if you have
the flopping-around kind, and stuff like that, the chances of dropping dead from
SUDEP range from 8-17% as far as anyone can tell. Perhaps higher if you're
also bipolar. I'm in the 17% bracket, if that because of the comorbid
bipolar. So, basically, I have, at best, only an 83% chance of waking up
every day over the course of my life. As far as I can tell, the odds favor
my dying in my sleep from SUDEP, so at least I have that going for me.
Puts some of those less-than-1%-chance side effects from meds into
perspective, huh?
So enjoy this website while you can. Every day may be its last.
All rights reserved. No warranty is expressed or implied in this information.
Consult one or more doctors and pharmacists before taking, or changing how you take any
neurological and/or psychiatric medication. Your mileage may vary. What happened to us won't necessarily
happen to you. Nobody on this site is a doctor,
therapist, or a pharmacist. We don't portray them either here or on
TV. Only doctors can diagnose and treat an illness. Some doctors tend to get pissed off
by patients who know too much about medications, so tread lightly when and where
appropriate. Diagnosing yourself from a website is like defending yourself in court, you
suddenly have a fool for a doctor. Don't be a
cyberchondriac, thinking you have every
disease you see a website about, or that you'll get every side effect from every
medication. Self-prescribing is just as dangerous. All information on this site has been obtained through personal experience,
the experiences of my friends, the experiences of people reported on online support
groups, and from sources that are referenced throughout the site.
Know your sources! As such the information
presented here is not a substitute for real medical advice from your real doctor, just a
compliment to it. No neurologists, psychiatrists, therapists or pharmacists were harmed in the production of this
website. All brand names of the drugs listed in this site are the trademarks of
the companies listed after them in the pages about the drugs, even though those companies
may or may not have been acquired by other companies who may or may not be listed in this
site by the time you read this. Always read the PI sheet that comes with your medications
and never ever throw them away. If you didn't get a PI sheet, demand one.
Loudly.
Crazy Meds is not responsible for the content of sites we provide links to.
We like them, or they're paid advertisements, or they're something you should
read to make an informed decision about a particular med. Sometimes
they're more than one of those things. But what's on those sites is their business, not ours.
Very little information about visitors to this site is collected or
saved. And from time to time I do look at search terms used to find it in an effort
to make the information I present more relevant. Use only as directed. Void where
prohibited.
"Everything is true, nothing is permitted." - Jerod Poore