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Why You Should Join a Support Group

 

We need support groups. You should belong to a support group.   Why?

 

 

  • The meds are never enough.  Whatever your problem is, if it's bad enough that you need to be taking these crazy meds, you need some kind of talk therapy, too.  And that applies to those of you with epilepsy, neuropathic pain disorders, migraines, sleep disorders and whatever hell else these meds might be used for.  It may not necessarily be therapy therapy, like those of us with mental illnesses need, but even if you had the greatest childhood on the planet and you need to take an SSRI or other antidepressant for irritable bowel syndrome, you need to speak to a counselor of sorts to get an idea of how to live your life with IBS.  And join a support group of people with IBS.  Because most doctors are just going to give you meds.  Yet a lot of these disorders and syndromes and such are totally life-changing, and you need a freaking instruction manual!  Epilepsy kills!1   Neuropathic pain makes daily living a struggle.  So even if you don't need on-going therapy like someone with bipolar disorder, depression, chronic panic/anxiety or schizophrenia does, if it's bad enough to required the meds listed on this site, it's bad enough to seek the recommendations of a professional to advise you as to how you need to make changes to your life so it doesn't suck as much as it has lately.

  • But what does that have to do with support groups?  Everything!  The counselors know only so much.  For a lot of them your problem is an intellectual exercise.  It's not often that you find a professional counselor who actually has the problem they're getting paid to solve for someone.  Maybe they dealt with it for someone else in their life, and that's pretty damn good.  If you find someone with a personal stake in a disorder, that's as good as finding someone who actually has it.  Anyway, the thing that helps most is experience.  Personal, direct experience.  People who have gone through it all before.  People who can tell you that you're not alone, that you're not the only freak like this.  People who can give you practical advice about how to live your goddamn life with whatever it is you have. 

  • So if what you have is bad enough to need meds, you have a lot of work ahead of you to get better.  And there are a lot of people who are going through what you're going through now, or have been through the same things.  You don't have to figure it all out.  They've made a bunch of the mistakes for you already.  Learn from them before you go off and make those same mistakes.  Plus things are going to be a lot more difficult, things that used to be easy.  Or at least easier.  Everyday things, like going to work, or just getting your life together enough to eat something and do the goddamn dishes once in awhile.  Stuff like that is a huge struggle when you're mentally ill and/or having seizures and/or dealing with neuropathic pain.  In a support group you get two things you're not going to get from most anyone else - understanding about how shitty your life is because of an illness, and not a bunch of garbage about you're being a lazy good-for-nothing slob; and practical coping techniques.  Like they say in AA, "One day at a time."  Well that's how it is when your brain hurts.  You have to deal with one thing at a time one day at a time.  So it's from a support group for whatever you have that you'll learn how to do the goddamn dishes often enough that you won't hate yourself about it, and you'll give yourself enough slack that you won't hate yourself at all about these issues because you have a brain injury for God's sake!  Handy hint: I may be too much of an environmentalist to use them, but I won't give anyone who has a brain injury shit about using paper plates and the like.  We've all got enough, er, on our plates.

  • Everyone expects their families to support them in a time of crisis.  HAH!  Oh, that's a good one!  OK, Mouse and I have issues, but parts of our families have been supportive of us, let's be clear on that.  But we know of far too many people whose families dropped them like the red-headed step-child once the problem of a specific mental illness or neurological disorder was diagnosed.  Face it, the stigma of mental illness and epilepsy is such that many people are completely freaked out, and don't want a Schizoid Mary anywhere near them ever again.  Or their families were the source of a lot of their problems to begin with, and not just the genetic source.  So even if the family put up a front of support, it may not be such a good idea.  But most humans need that kind of familial interaction and reassurance.  Where are you going to find it?  In your support group, that's where.  They quickly become families.  You'll find yourself closer to some of your support group members than you are to blood relatives.  I'm not even sure how many siblings my mother has, let alone how many first cousins I have, what any of their names are or where they live.  I know the name of only one of my half-siblings, but I don't know where he is, if he's still alive or anything like that.  If my father weren't famous at one time I'd have no idea about when he would finally die.  But I send Christmas cards to support group members scattered across North America and keep tabs on them to make sure their lives are together and they're doing what is needed to stay alive and relatively sane.  I'm a probably an extreme example, but you get the idea.

  • And there's the whole question of if you should be on meds at all.  Everyone questions that.  It's not crazy thinking.  OK, sometimes it is.  Face it, if you're bipolar, if you're schizophrenic, if you're epileptic, you always have to be on meds.  There are a few very rare exceptions, but there's no way in Hell I could tell you about who and what and how.  There was also a retired woman in New Jersey who won the Lotto twice.  Why did she keep playing after winning the first time?  How is she going to live long enough to spend the money she won from the second jackpot?  Odds-defying shit just happens.  But the point is, there are some illnesses where you just have to keep taking your meds forever, or until they come up with something better, and that's the way the world works.  And being in a support group helps you stay on your freaking meds, as much as they suck.  Please read my 12 Steps to Stay on Meds  for when you feel like flushing all your meds down the toilet.  But for a lot of other disorders, meds truly are optional, and you're right to question if you need them or not.  I sure as hell don't know if you need them or if you don't.  Getting a second opinion is critical, but I'll tell you what really helps, ask people who have the disorder.  Ask them about how bad it is for them.  Ask the ones who take meds and the ones who don't.  Find out from other people.  It's difficult to know what goes on inside of someone else's head, but believe me, it helps them to talk these things out.  Try to gauge just how badly it sucks for you and everyone else, and just how much the meds suck.  Because it really does come down to what is going to suck less - the meds or the illness.  You are the only person who can make the decision, but you do have to factor in how much emotional damage your illness is doing to people around you.  People in a support group can give you that kind of perspective.

 

 

 

 

 

 

 

Talking it out is one of the best things you can do for most of your issues.  Again, you may not even need meds for something like depression, anxiety or PTSD.  Just talking it out with a therapist and, most importantly, a support group, along with a proper diet (And, like finding the right meds, finding the right diet is going to involve a lot of trial and error.  Your mileage may vary.  One size does not fit all.  But I'm convinced that too many people eat too much crap, and that doesn't help matters.)  and regular exercise.  You can't be lazy.  Whether you take pills or not, you have to eat well and exercise regularly if you expect to clear your head.  But I digress.  When you talk things out with a therapist, often the therapist will guide you along certain lines or to certain events.  That is all well and good.  And, presuming you have found the right therapist doing the right sort of therapy for your condition, it's eventually going to get you to a place where you're just not so fucked in the head all the time.  But there are times when you just have to get whatever the hell is really bugging you off your chest however the hell you need to do it.  And you need to tell it to people who have been through the same shit as you have.  That's where the support group is so freaking necessary.  There is no other way to explain it, but those of us who are mentally ill are just shit magnets.  Either we actively go out and cause trouble, or we internalize a lot of the weirdness in our heads and that just sets us up to be the victims of the universe.  Usually the latter.  Despite what you see on movies and TV, the mentally ill are six times more likely to be the victims of violent crime than the perpetrators.   In a support group you can just let it all out!  From the Dark Age through the Middle Ages to the Renaissance the popular form of treatment for mental illness in Europe was the exorcism of demons.  In a way, they were on to something.  We all have our personal demons that need to be exorcised.  The therapist/priest can do only so much.  I have a lot more faith in the shamanistic practice of the support group, where fellow wounded healers can help each other exorcise the demons within.  The demons of child abuse, the demons of sexual assault, the demons of suicide attempts, the demons of surgery without anesthesia, the demons therapy that went way wrong, the demons of highly dysfunctional families, the demons of substance abuse, the demons of the horrible things done when manic, so many goddamn demons.  In the circle of a support group these demons can be exorcised.  Normal people want you to keep the demons inside of you.  They can't handle how ugly and painful those demons are.  People have been "fired" by their therapists because their demons have been too ugly and painful.  In the right support group you can finally exorcise the demons that have been gnawing away at your guts for so long.  Out, demons, out!

Don't forget to give back.  Once you feel up to it, help others with your experiences.  Talk about what you've been through.  You never know, you may still have a few lingering imps in your system you need to get rid of years later.

Another resource for support is wherever you go for your spiritual needs.  Be that online or face-to-face.  Many spiritual groups deal with mental health / neurological issues as well.  I'm all for getting spiritual assistance along with whatever other therapies you're doing.  I don't have any pointers to particular groups because there are just too many, and you really have to find the practice that works for you. 

As His Holiness the Dalai Lama said during a recent visit to San Francisco, all religions are good.  Just find one.  If you don't like it, find another one.  The religion doesn't really matter, just as long as you're doing something.

If anyone knows something about exorcising demons, it's the religious types.

 

Anyway, here are the different support groups:

Online Support Groups vs. Face to Face Support Groups   

Multiple Diagnoses / A Little Bit of Everything   

Bipolar   

Depression   

Panic, Anxiety, OCD & PTSD  

ADD/ADHD 

Autism  

Epilepsy 

Schizophrenia 

Migraines & Other Headaches 

Neuropathic Pain 

Substance Abuse & Other Addictive Behaviors  

Self-Injury / Cutting 

Not Otherwise Specified

 

And if those aren't enough, see the pages on sites with more information.

Take my word on it, they help.  They really do help. 

The groups I'll be providing links for are ones that guests can freely view without having to register first.  I'm all for being really private and requiring registration before anyone even reads what's in your group, but I prefer allowing people to sample a group without knowing they're there.  Each method has its pros and cons.

 

Crazy Meds Home  Crazy Meds Talk   Online Support Groups vs. Face to Face Support Groups    Multiple Diagnoses / A Little Bit of Everything    Bipolar    Depression    Panic, Anxiety, OCD & PTSD   ADD/ADHD  Autism   Epilepsy  Schizophrenia  Migraines & Other Headaches  Neuropathic Pain  Substance Abuse & Other Addictive Behaviors   Self-Injury / Cutting  Not Otherwise Specified   Sites with More Information  About Crazy Meds

Crazy Meds Home  Crazy Meds Talk  About Antidepressants   About SSRIs   About Anticonvulsants / Mood Stabilizers    About Atypical Antipsychotics   About Benzodiazepines   About Stimulants   Finding a Doctor    Sites with More Information     Support Group Sites    About Crazy Meds    Crazy Meds: The Blog

Support Groups in the News

 

The Overlords of the 12 Zernox Galaxies have compelled me through messages in the Sunday Chronicle to beg you for your support.  So if this site has been of use and/or amusement to you, visit the Support Page to find out how you can help.   This includes reviewing Crazy Meds for Amazon.com and/or

rating this site for Psych Central:

There's also our Mental Mall to snag some free software or a purchase some books. 

Better yet, if you run a business and want to advertise on Crazy Meds, see our page on ad rates and policies.  I'm all about fiscal transparency, so follow the money for full disclosure of my finances.

 

 

 

 

Hey, did you find this page all by itself through Google or some other search engine? Great! But to really appreciate the entire site, you need to start here.

 

 

 

Take care of yourself, and keep taking your crazy meds!

If you still have unanswered questions about this or other medications, including which one is, or combination of meds are the best for you, your best bet is to ask on Crazy Meds Talk.  Better yet, if you want to let the world know how they worked out for you and want to help out others in their quest for the correct meds, join the party.
If you 
want to discuss your issues, I suggest checking out one of the various support groups online.  
Otherwise, if you're letting me know about how much you like or hate the site, or  need to let me know about medication effects in private, then just drop a note to jerod23 at gmail dot com  Honestly, I usually don't have a lot of time to answer e-mail these days.  The snide autoresponse message that may or may not hit your mailbox is going to tell you the same thing.
Another problem is that you may not get a response even if I wanted to send you one.  You see, so many dickweeds with malicious intents and too much time on their hands have appropriated the crazymeds.org domain name to use for their spam, viruses and the like.  Subsequently some lazy-ass e-mail protection software authors just go by the domain name, and not the IP address.  So I've been blacklisted because of the actions of others.  Or the software just doesn't like the domain name because of the "crazy" and/or "meds."  Or your question about a particular medication will set off spam flags.  So the e-mail just wouldn't go through regardless.  Sorry.

 

1.  In addition to having a suicide rate second only to the bipolar, epileptics have a mortality rate three times higher than the general population.  We can have a seizure that causes an fatal accident, such as an absence seizure or complex partial seizure while taking a bath.  Or we can have a super-seizure, known as status epilepticus, that will literally fry our brains until we die, or turn into a vegetable.  Or we can have a quiet wacky seizure that will kill us in ways medical science does not yet understand.  That's known as SUDEP, Sudden Unexplained Death from Epilepsy.  As opposed to all of the explained deaths from epilepsy.  Depending on various factors, like the types of seizures you have, if you're prone to having them at night or during the day, if you have the flopping-around kind, and stuff like that, the chances of dropping dead from SUDEP range from 8-17% as far as anyone can tell.  Perhaps higher if you're also bipolar.  I'm in the 17% bracket, if that because of the comorbid bipolar.  So, basically, I have, at best, only an 83% chance of waking up every day over the course of my life.  As far as I can tell, the odds favor my dying in my sleep from SUDEP, so at least I have that going for me.

Puts some of those less-than-1%-chance side effects from meds into perspective, huh?

So enjoy this website while you can.  Every day may be its last.

 

Created Monday, December 29, 2003

Last updated Monday, May 24, 2010

Copyright © 2003 - 2008 Jerod Poore. All rights reserved.

 

Almost all of the material on this site is copyright © 2002, 2003, 2004, 2005, 2006, 2007, 2008, 2009 and 2010 Jerod Poore. Except, of course, the PI sheets, those are the property of the drug companies who developed the drugs the sheets are about.  And any documents that are written by other people which may be posted to this site will remain the property of the original authors.  You cannot reproduce this page or any other material on this site outside of the boundaries of fair use copying without the express permission of the copyright holder.  That's usually me, so just ask first.  That means if want to print out a few pages to take to your doctor, therapist, counselor, support group, non-understanding family members or something like that - then that's OK to just do.  Go for it!  Please.  As long as you include this copyright notice and the following disclaimer, I'm cool with it.

All rights reserved. No warranty is expressed or implied in this information. Consult one or more doctors and pharmacists before taking, or changing how you take any neurological and/or psychiatric medication. Your mileage may vary. What happened to us won't necessarily happen to you. Nobody on this site is a doctor, therapist, or a pharmacist. We don't portray them either here or on TV. Only doctors can diagnose and treat an illness. Some doctors tend to get pissed off by patients who know too much about medications, so tread lightly when and where appropriate. Diagnosing yourself from a website is like defending yourself in court, you suddenly have a fool for a doctor. Don't be a cyberchondriac, thinking you have every disease you see a website about, or that you'll get every side effect from every medication. Self-prescribing is just as dangerous.  All information on this site has been obtained through personal experience, the experiences of my friends, the experiences of people reported on online support groups, and from sources that are referenced throughout the site.  Know your sources!  As such the information presented here is not a substitute for real medical advice from your real doctor, just a compliment to it.  No neurologists, psychiatrists, therapists or pharmacists were harmed in the production of this website. All brand names of the drugs listed in this site are the trademarks of the companies listed after them in the pages about the drugs, even though those companies may or may not have been acquired by other companies who may or may not be listed in this site by the time you read this. Always read the PI sheet that comes with your medications and never ever throw them away.  If you didn't get a PI sheet, demand one.  Loudly.  Crazy Meds is not responsible for the content of sites we provide links to.  We like them, or they're paid advertisements, or they're something you should read to make an informed decision about a particular med.  Sometimes they're more than one of those things.  But what's on those sites is their business, not ours.  Very little information about visitors to this site is collected or saved. And from time to time I do look at search terms used to find it in an effort to make the information I present more relevant. Use only as directed. Void where prohibited.

 

"Everything is true, nothing is permitted." - Jerod Poore